Database design
The HVS Aortic Valve Database is a longitudinal observational cohort study enrolling patients with ascending aorta aneurysm and/or AR, or aortic stenosis. Centers all over the world who are interested can participate.

Some key features of the online database:

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Patient population

Patient Population
The HVS Aortic Valve Database includes the following patient populations:
AR Patients operated on because of AR (including congenital mixed aortic valve disease) and/or aortic aneurysms (root and tubular ascending aorta).

AS Patients with aortic stenosis receiving a surgical or transcatheter AV replacement, that are below the age of 65

It is also possible to only add AR or AS patients in the database.

Centers without an AV repair program are encouraged to join the HVS Aortic Valve Database as well.
It is important to enroll all consecutive patients within a center, in order to keep the database as representative as possible.

Data Collection
The HVS Aortic Valve Database is open for patient enrollment since January 2013. Collected data includes:

Patient characteristics
Patient demographics
Comorbidity (EuroSCORE)
Diagnosis of valve and/or ascending aorta disease
Aorta phenotype

Procedural data
In depth peri-procedural data
Echocardiographic data pre- peri- post-operative and at discharge
Complications at discharge

Follow-up data (every year after surgery until patients' death)
Clinical data including complications and treatments
Echocardiographic data

Clinical tool
The HVS Aortic Valve Database is designed to be of additive value for physicians. Beside data analysis and research it can be used as a clinical tool in daily practice as there is the possibility to generate a Clinical Summary on patient level. The Clinical Summary summarizes all relevant information of that particular patient in one on-screen-view or report to be printed. This summary can be used by physicians in the outpatient clinic as it will visualize for example all echo results from pre- and post-op till the last follow-up visit. Patients can be searched by their names to support the physician (see further specification). In addition, the application will allow to filter and select specific subgroups, like a list of the deceased patients, patients with AR grade 2 or patients that need to be contacted for follow-up.

Three good reasons to participate

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